Forum Posts

True Taylor
Nov 25, 2022
In Welcome to the discussion
Just sharing this info in case anyone is interested in participating. Its for young people 15 - 30 years of age: "We are pleased to inform you that Employment and Social Development Canada is holding a virtual Youth with Disabilities Town Hall on Monday, December 5, 2022, from 11 AM to 1 PM (EST). The Town Hall will be hosted by the Honourable Carla Qualtrough, Minister of Employment, Workforce Development and Disability Inclusion, as part of the Government of Canada’s program in recognition of International Day of Persons with Disabilities 2022. The Town Hall will focus on two key topics: (i) climate action and disability, and (ii) youth employment and entrepreneurship. The event will open with special keynote speakers and remarks by Minister Qualtrough. This 2-hour event will build upon past youth engagement, including roundtables held prior to and after the 2022 Conference of States Parties (COSP) to the United Nations Convention on the Rights of Persons with Disabilities, Canada-led COSP side events on youth leadership, and the June 2021 Youth with Disabilities Town Hall held during National AccessAbility Awareness Week. We are inviting youth with lived experience (15-30 years old) to participate in this event and would appreciate your assistance in sharing this information with your networks. Please note the event will include American Sign Language, Langue des signes Québécoise, captioning (English and French), and official language translation. Registration for this event is required by providing the following information to Accessible-Canada@hrsdc-rhdcc.gc.ca no later than 5PM (EST) November 30th, 2022: · Contact information: Name, phone number, email address · Confirmation that the participant is between 15 to 30 years of age · If accompanied by a support person, please provide their name, phone number, email address · Official language of preference: English or French · Interpretive or other services or accommodations that the participant requires · Confirmation that the participant has read and agrees to the terms outlined in the attached ESDC Video and Photo Consent and Release Form. This may either be done by completing the attached form or confirming in the registration email that the participant has read and accepts the terms outlined in the form. Please note that as a matter of workplace safety for our interpreters and to ensure they can readily understand the speakers, all participants are required to use headsets or earbuds with microphones. Failure to do so will result in not being able to participate in the discussion. Should this not be feasible for accessibility or other reasons, participants must advise us upon registration so we may explore alternate arrangements. We appreciate your help in circulating this information to support youth participation in this event. " Consent and Release Form (Automatic Download)
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True Taylor
Nov 24, 2022
In Welcome to the discussion
I wanted to share this for anyone like me who enjoys geeking out on autistic research. This site Autism in Adulthood features "research and scholarship on the most pressing issues affecting adults on the autism spectrum, from emerging adulthood to later life." and was mentioned by at least one of the researchers in the session "Data, Research and Evaluation" at last week's conference. I've quoted some of their stuff before as I follow some of the researchers on twitter. You can "Sign Up for TOC alerts" and they'll send periodic alerts about new articles - sometimes you can only read the summary without paying but its still pretty good if you're into that kind of thing. One that I received recently was "A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice." I mean, wow...'the Narrative of Stigma and the Illusion of Choice' its all right there in the title. One of the many things I found interesting in this one relates to a conversation we had recently on here: "We also argue against the idea that masking is a “female” thing that occurs as a result of there being a “female-specific” subtype of autism, because this might make it harder for some people to get a diagnosis (e.g., nonbinary people, and men and women who do not fit with any of the current criteria). Instead we argue that people need to recognize that autism does not look like one “type” of person, and try to separate ideas about masking from ideas about a person not fitting a stereotype." I thought this was fascinating: "We hope that this analysis will help researchers to understand that some aspects of masking might be unique to autistic people, but some aspects might be like other kinds of “pretending to be normal” that other people who are socially excluded use to try and fit in." Fascinating because it sometimes seems like autistic people are the only ones not considered 'typical' when obviously there are many other groups to whom that could apply - imagine if everyone was able to be and act like themselves. This next paragraph which relates to the medical model of disability seems to relate to another conversation the other day about trauma: "A diagnosis of autism is rooted in the specification that one must experience “significant impairment” to be classified as autistic. As such autistic “traits,” “behaviors,” and experiences cannot be labeled autism unless they are experienced negatively or are said to cause “impairment.” As a result, autistic people are viewed as being on the fringe of human normality both in academia, and in society in general. With a pathologized status comes the experience of stigma, dehumanization, and marginalization." "stigma can manifest in negative social judgments toward autistic people who are more likely to report negative life experiences including bullying and victimization. Thus acknowledging the social context in which autistic ways of being are stigmatized and derided is essential for understanding reasons that masking may occur, and what can be done to reduce the pressure to mask and associated impact." I think stigma is probably the reason even some autistic people don't want to be associated with other autistic people. These statements are fairly disturbing with regard to the cost of all this to autistic people: "A potential relationship between masking and negative outcomes such as autistic burnout and suicidality means that it is important that we acknowledge masking as a self-protective mechanism rather than a necessarily conscious choice." "The further suppression of internal states and associated coping mechanisms (i.e., stimming) alongside an already present difficulty identifying one's own emotions could potentially be disastrous, leading to further long-term difficulties in mental health and well-being (i.e., burnout and suicidality)." Masking seems to be the cause or at least a major factor in depression, anxiety, social anxiety and perhaps even more of the so called comorbid conditions autistic people have. I say so called because to me there should be a different name for the conditions that are 'hitchhiking' along with autism from birth and those conditions that develop as a result of being autistic in a non autistic world. The definition I've seen for comorbid is "existing simultaneously with and usually independently of another medical condition" so to me depression, anxiety, social anxiety should be called something else. Personally for me I don't think I know how to act without masking. The idea that I should be nice, get along/go along with people, don't make a fuss, don't argue, etc has been ingrained in me to the extent that I get really anxious when I have to disagree with someone and I usually try to avoid that at all costs. But I can't always avoid it especially when 'going along' or 'being nice' to one person means being nasty to someone else. And even when it doesn't and I just go along with things I don't believe in, that also makes me anxious and then I have to get out of that situation too. Ultimately I think masking is the cause or source of much of the ruminating that goes on in my head most of the time - what I did - what I should have done, what I said - what I should have said, what someone else said or did and what I should have said or done in response, on and on. And now I'm recognizing that I'm still masking even when I'm with autistic people...the old habits kick in and I still don't know how to disagree with someone, still don't know how to respond appropriately without feeling like I'm vibrating inside, about to burst into tears, or having a panic attack. But enough about me, I recommend reading the whole thing. It gets a little dense in the middle if you're not familiar with some of the terms which I'm not :) but then it gets into double empathy, more about the so called female autism profile, whether masking could be learned behaviour passed from parent to child...
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True Taylor
Nov 14, 2022
In Welcome to the discussion
Just sharing this info in case any of our members are interested. The contact information is listed for each. "Support Group for Parents of Children with ASD Goals: - To foster a safe space for sharing, learning and support of one another - To build mental health tools and skills to take beyond the group - To receive mental health support from clinical psychology (PsyD) students UPEI clinical psychology students would like to invite parents of children with ASD to join a mental health support group. The support group will meet on two occasions during Fall 2022 and will consist of a parent-led discussion and clinical-led discussion. The goal is to foster a safe space to share personal experiences and concerns, to provide support and learn from each other. As well as provide the opportunity and resources to learn tools and skills while receiving mental health support. Topics will include: Session One: Mindfulness and Acceptance Session Two: Values and Self-Care Topics are subject to change based on participant feedback, and the group will be tailored to and driven by participants’ experiences, emotions, and concerns. Location: Room 142, Andrew Hall at the University of Prince Edward Island. Date and Time of Sessions: Session One: November 17th (5:30-7:00pm) Session Two: December 1st (5:30-7:00pm) RSVP to emacquarrie8583@upei.ca or Nathalie@autismsociety.pe.ca " Youth The Future - New Cohort November 28th We are excited here at Youth the Future to begin our newest Cohort on November 28th. We are currently taking applications and are looking for eager participants to join us! Services available Island-wide.
Sharing Information on two Programs: 1) Support Group for Parents  2) Youth the Future Pre-Employment Program content media
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True Taylor
Oct 31, 2022
In General Info
I noticed some of our members have set their profiles to private which means they can't be seen by or interact with other members and they can't be added to the group(meaning the group listed on the groups tab.) So that caused me to wonder exactly how 'public' is a public profile. I contacted tech support and they responded today. I thought I would share the response so everyone is aware so here it is: "I can see that the group you created is private, so only members of this group can see the content. Since, you have added a checkbox, so people can join a community, please note it makes all new profiles public automatically. When using groups, the differences between public and private profiles are: Public profiles: Member profiles are visible to other site members Members can follow and be followed by other site members Members can post, leave comments, and react to posts and activity Private profiles: Only the members names and profile picture are visible to other site members Members cannot follow or be followed by other site members Members cannot comment, post or react to site content Members cannot be added to any groups I completely understand your concern, though in any case, their profiles are not visible to the public or people that have not become members." The only place for member interaction that is actually public is the blog and I try to make that distinction whenever I describe this site. If you post a blog or comment/react to a blog your user id is visible to anyone reading the blog including the general public. I hope that information is helpful to everyone. You can, of course, continue with a private profile if you wish but you will be missing most of the benefits of joining including interaction with other members, ability to post in the forum and access to a group that we comment in and some of us have uploaded pictures, etc.
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True Taylor
Oct 27, 2022
In General Info
Hi everyone. I'm putting together some rules/guidelines/etc for the support group PEI Autistic Adults to ensure all our spaces are inclusive, accessible to all members, accepting, and supportive so everyone is comfortable interacting. I was already looking into rules for support groups and then I've received some comments and one complaint so I thought I better get on with it. 😃 I'd really like to get some feedback/suggestions this time on how ALL our spaces can be accessible to ALL members, accepting, and supportive. Please comment below or send me a private message. One thing mentioned was people or organizations belonging to our groups who are not autistic - I don't mean not diagnosed, I mean not autistic - so I'd like to have feedback on that. Do you feel you're being monitored or does it make you uncomfortable in any way? I thought they would be interacting with us in a positive way, posting about programs or support for adults but that doesn't seem to be the case. And I found a site all about making autistic spaces and community inclusive (gotta love a deep dive) so I expect to get some suggestions from that. Please comment below or send me a private message. thanks!
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True Taylor
Oct 21, 2022
In Welcome to the discussion
On November 15-16, 2022, Public Health Agency of Canada (PHAC) will host the National Autism Conference. This virtual event is free and open to the public. Click HERE to register. This is what PHAC call another 'element' in the development of a national autism strategy. I've posted before about the CAHS assessment on autism which was an earlier 'element'. To produce that there were surveys, submissions, zoom sessions, etc and now they're moving on to a conference. Adults and seniors need to be represented at this conference. I've already seen information describing the outcomes of the strategy with nothing for autistic adults/seniors who do not live with their parents, like this: "For Example... • More programs that help autistic kids in school • Making it easier for families with autistic people" While I think these are both valid and important results from the strategy they need to also consider having programs and services for adults and seniors who are on their own either voluntarily or as a result of losing their family/supports. So Registration is now open for the conference and I really really hope people will consider attending even for part of it. When I attended the zoom meetings in July 2021 I didn't appear on video and I submitted most of my input in writing after it was over. I have issues responding 'on the spot' (possibly due to executive function issues) especially when I'm not familiar with the specifics of what's going to be discussed. The non autistics hosting the conference have the advantage. But I think about this like voting - if you don't vote you shouldn't complain about the election results and if we don't tell them what services we need we shouldn't complain they're not listening.
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True Taylor
Oct 15, 2022
In Welcome to the discussion
A couple of young autistic adults have posted on our Facebook group and I thought I would post here in case anyone here has any suggestions for them: "I am an adult on the Autism Spectrum who is interested in the arts and I am looking for a program to do? (My Hobby is Art instead of Sports) I have multiple artistic skills (Visual Arts, Literary Arts, Performing Arts and Culinary Arts)." You can update Facebook with your suggestions or just post them here if you don't use Facebook. Thanks!
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True Taylor
Oct 13, 2022
In Meetings!
We are having a meeting Saturday October 15, from 3-4pm at the UPEI Robertson Library. All members welcome! Date: Saturday, October 15 Time: 3:00-4:00 pm Location: Room 306, UPEI Robertson Library. If you look at the diagram from last week it's the first room in that row. Parking options also same as last week. We can talk about our group and how to move it forward or any thing anyone wants to talk about. See you there!
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True Taylor
Oct 09, 2022
In Meetings!
It would be great to have regularly scheduled weekly meetings and then everyone would know and could plan for it. Liv has booked a room for us at UPEI's Robertson Library for Saturday afternoons and we now have an offer of Tuesday evenings from 6-8 pm. As new people join and people's plans change members can vote or comment on their preferred meeting times. If you're interested in in-person meetings PLEASE vote for your preference and if your preference isn't listed please comment below:
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True Taylor
Oct 08, 2022
In Meetings!
We are having a meeting today, October 8, from 3-4pm at the UPEI Robertson Library! Liv booked the room and sent a 'FB Event' invitation with meeting information to all members, so hopefully some of you received that notification. Meeting information is listed below just in case! Date: Saturday, October 8 Time: 3:00-4:00 pm Location: Room 349, UPEI Robertson Library. Images of the library map are posted to help you find the room. Metered parking is not enforced on weekends, so on-campus parking is available for free. See campus map below. She highlighted some parking lots in green.
Meeting today! content media
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True Taylor
Oct 06, 2022
In General Info
We have an app! Hopefully that will be better for those who access with their phones which is now most people :) If you go to Google Play or whereever you get your stuff, download Spaces by Wix and once its loaded join using MIHW1W as the code. Its new so still quite buggy but give it a try and see what you think. I sent a notification but not sure who gets the notifications so I thought I'd post here too.
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True Taylor
Oct 05, 2022
In Meetings!
Anyone up for a meeting this weekend? Not sure if everyone has or will have power. Also whether people will be too busy still doing cleanup. I don't have anything booked yet but if you're interested please respond as soon as possible and I'll try and get something. Lots to talk about!
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True Taylor
Sep 11, 2022
In General Info
Just wanted to mention our group is now posted to the mental health resource directory for eMentalHealth.ca Prince Edward Island. linked here We are also now listed in the Support Group section of the PEI division of Canadian Mental Health Association's website. CMHA also got us listed in the Guardian newspaper in their listing of support groups. They will update that listing for us once we decide on regular meetings. Just mentioning PEI Autistic Adults on Facebook's 'ASK PEI' when I was looking for a meeting room got us more members so I think there are lots of people who would like to join us if they knew we existed. I'd really like to get something in front of the 'general public' if anyone has any ideas of how to do that. I'm still trying to get something on CBC PEI online but they would like to do an interview and have not yet agreed to do something via email. I have also contacted the Eastern Graphic, West Prince Graphic, and the Guardian for the same thing. If anyone has suggestions on how we can become more newsworthy please share in the comments.
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True Taylor
Jul 12, 2022
In General Info
Due to popular demand (lol) I have created a twitter account and linked it to the website. Its @PEIAutismAdults because PEIAutisticAdults was too long and I'm not clever enough to come up with something else. I've started out following the 52 autistic accounts from my own account - autistic websites, autistic advocates, and autistic individuals. 9 are following back so far. I hope members with a twitter account will follow it. You can just click the twitter icon on the website to find it. If anyone wants to create an Instagram account for us, go for it. You can use the same name or something similar and put a link to the website on it and then I can create a link from the website. You could post the memes I have on the quotes page or any autism related content you like. One more thing I wanted to add that I've been thinking about for awhile. I mentioned meetings a couple days ago but some might want to meet with just a couple people to start and not the whole group or maybe you're thinking you want to meet your peers not some autistic boomer 😉 No worries...just go to the group tab or the member tab follow a few members, message them. You could chat online and/or see if anyone wants to get together for a coffee or a beverage on a patio or anything you want. Don't forget they probably want to connect too. Hope everyone is enjoying their summer so far.
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True Taylor
Jul 10, 2022
In General Info
One of our new members, Julien, has created a Facebook group PEI Autistic Adults with a link to our website intended to assist growing the group. I'm hoping all the members here will join the new group as that will encourage others to join. The more, the merrier! Just click the facebook icon on our website to go directly to the group. Hopefully this will assist in boosting membership. Anyone who searches for a group on Facebook will then become aware of peiautisticadults.com and anyone who views peiautisticadults.com will see the Facebook icon and other mentions and people can join both. Also, if you would like to meet/get to know other autistic adults please update the pinned post in the General Info section of the forum when you get a chance. Three members have responded so far. Please let us know when (days, times) you'd like to meet as well as your general location. If you have access to a meeting space please include that in your post. Thank you!
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True Taylor
Jun 14, 2022
In Welcome to the discussion
I've been listening and enjoying a podcast: Not Neurotypical w/ Laura Zdan (where ever you get your podcasts :) I'm just finishing up season one. Some of it is a little frustrating...she was able to see a prominent psychiatrist who specializes in adult autistic diagnosis two weeks after deciding she was autistic. Not many (or any) of us have the same opportunity. But I'm really enjoying most of it. She talks about autism and ADHD and her experiences with both. She was diagnosed ADHD at age twelve and autistic in her thirties after her son was diagnosed. Unfortunately I think its fairly common for women to be diagnosed when their children (or even their grandchildren!) are. I was just reading "Eighty percent of females remain undiagnosed at age 18, ...with long-term severe negative consequences affecting mental health, self-perception and access to support." I'd like to add a section in Resources for podcasts. If any other members have neurodiverse podcasts that they listen to, I hope you'll share them in the comments and I can add them to Resources.
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True Taylor
May 16, 2022
In Welcome to the discussion
I know some of our members have children so I wanted to post this here in case anyone is interested. You have to be a member of Autism Society of PEI but if you're not there's info at the bottom re how to join: "The Autism Society of PEI has the exciting opportunity ahead and we are looking to you our members for your feedback. We have a fantastic opportunity to collaborate with Handle with Care in the future to host Handle with Care groups targeting our Autism Society of PEI members. Handle with Care is a FREE, 8-week program for parents or caregivers. Programs are delivered in-person or virtually, designed to meet the needs of the group for each offering. The program is for everyone who cares for or works with children. The program is designed to assist parents/caregivers in promoting positive social and emotional well-being of children, birth to 6 years of age and beyond. This program consists of simple, interactive strategies that build on the strengths of the parent/caregiver and celebrates parenting, recognizing the value of every parent, caregiver and child. Handle with Care is based on 4 foundational Building Blocks that include; Trust and Attachment, Enhancing Self-esteem, Expression of Emotions, Relationships with others and focus on parent and caregiver self-care. http://www.ecdaofpei.ca/community/index.php We hope you will give us a few minutes of your time for some data collection before we move forward with booking this program! Please take five minutes and complete the survey below answering a few questions regarding this course. https://www.surveymonkey.com/r/7FPNKVS Thank you for your time and information! Take the Handle with Care Survey Forget to Renew your membership with The Autism Society? Please note - Program attendance is for paid Autism Society members only. Be sure to renew your membership today to take part in the future programming options throughout the year! New and returning members may download a 2022 Membership renewal form below! Return the form to Nick or Nathalie. Family Membership payments of $30 can be sent to: Nathalie@autismsociety.pe.ca Keyword - Renewal or New member Download the 2022 Membership Form
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True Taylor
Dec 25, 2021
In Welcome to the discussion
Wishing you all an enjoyable holiday and all the best in the new year. Take care of yourself and just do the parts you like. ❤️
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True Taylor
Aug 30, 2021
In Welcome to the discussion
Anyone have any ideas on how to get the word out about the group/website/forum please add any suggestions below. It would be great to get some members and grow the group 😀
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True Taylor
May 01, 2021
In Welcome to the discussion
The Canadian Academy of Health Sciences is seeking input from Autistic people, families and supporters including service providers, educators and organizations. This input is being gathered as part of an assessment on autism that is considering scientific information and also informed by this public engagement process. The assessment will help inform policy makers as they consider the development of a National Autism Strategy. There are three ways to get involved in this public engagement process: Individuals can take a survey or participate in discussion forums on the engagement hub until May 31 Community conversations on autism are taking place on Zoom until May 13 Written submission are being accepted from organizations until May 31 Please go to https://consultation-en.cahs-acss.ca/i-am-autistic to register and participate. Nothing about us without us
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True Taylor

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