Forum Posts

peiautisticadults
Nov 13, 2022
In General Info
Wondering if there are other members who are interested in moving the group forward and would therefore be interested in being leads for the group? Some of the other support groups I've seen like this have multiple leads or a team. The ADHD support group has 4 leads which I think makes them a more cohesive group as they're more representative of the rest of the members. I have a lot of ideas (as I'm sure others do) but I sometimes get overwhelmed trying to figure out how to gauge support or engage with others to implement them. I'm thinking a team of 4 or even more would be better to make this a more supportive group with more supportive engagement by and for the members. The leads could possibly then meet with others like CMHA or Sandy Slade, etc to get more ideas of how to be a successful support group. We have our intention now and our guidelines that hopefully members agree with and I would invite anyone interested to read the Home and About pages on this website. Not that you have to agree with all that but that will let you know my intentions when I started this. Not being a very good speaker I tried to let the website speak for me. 🙂 Please comment below or email peiautisticadults@gmail.com with any questions or if you're interested. Thanks!
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peiautisticadults
Nov 13, 2022
In Meetings!
Currently we have a meeting space at UPEI's Robertson Library for Saturday afternoons and we have an offer of Tuesday evenings from 6-8 pm at the Cross Roads Animal Health Centre. We'd like to know your preferred meeting days/times. If neither of those work for you please vote and add YOUR preferred meeting time or location in the comments below. Thank you!
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peiautisticadults
Nov 13, 2022
In Meetings!
Wondering if people would be interested in having a hybrid meeting on Saturday afternoons with in person and zoom participants? Are any members interested in connecting via zoom? There would be some things to work out - I think you can only meet for 40 min unless we buy a license - but I just wanted to know if there's interest and if anyone wants to try it. Could be an option for people who are a little nervous, or don't live near Ch'town, or have transportation issues like I've been having. Reviews are mixed online - some like hybrid meetings and some hate them - like anything I guess. 😄
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peiautisticadults
Nov 02, 2022
In General Info
Big thanks to everyone who contributed! I recognize that these guidelines do not cover all situations and that no space is perfectly safe for everyone. However, I hope we can all work together to build a kinder and more inclusive community. These guidelines are a continuous work in progress and apply to all PEI Autistic Adults Support Group's spaces, online and in person. By being in these spaces, you agree to the guidelines. 1. Practice respect and kindness. Treat each other with the dignity and compassion that all humans deserve. Listen to and honour other people’s experiences. 2. Be considerate about other people’s boundaries. Accommodate other people’s access needs as best as you can. Try to understand and respect other people’s boundaries about their personal lives. Everyone has different levels of comfort around sharing personal details. Examples of personal questions that some people may feel uncomfortable with include ones about medical history, gender identity, sexual orientation, or racial background. Let others share the information they choose to. If any person asks to be left alone, respect their wishes. 3. Say your own boundaries. Try to practice saying no to requests you feel uncomfortable with. This can be very hard for some people. We encourage everyone to try saying their boundaries by saying no, but it is up to you exactly what, when, how, and to whom you say no. Let others know about your access needs and what they can do to respect them. 4. Practice anti-oppression. This means working together to not participate in racism, sexism, ableism, homophobia, transphobia, antisemitism, religious discrimination, classism, and ageism. Avoid making assumptions about other people’s identity, including their gender, race, ability, or sexual orientation. We may not know things or make mistakes. It is okay to make mistakes, but we should try to recognize our mistakes and make changes to not hurt others again. Practicing anti-oppression is hard. Trying to practice anti-oppression can also lead to cases where we make mistakes, and do end up harming people—and so would have to have to reassess and readjust how to respond. 5. Create dialogue. Dialogue is a two-way process. This means balancing deep listening and sharing. Speak from your own lived experience and listen to others’. Respect others’ communication preferences. 6. Use respectful language. Use other people’s pronouns . Ask if you don’t know someone else’s pronouns. Use the identity labels that others prefer when referring to them (for example, autistic person versus person with autism). Ask if you don’t know which terms to use to describe someone. Don’t use slurs (e.g. n-word or r-word) or insults. 7. Ensure confidentiality. Any personal or private stories shared in PEI Autistic Adults spaces need to stay in those spaces. Do not share anyone’s personal information, including conversations, contact details, cut and pasted messages, or screenshots. Be careful about outing others. Some people are open about parts of their identity (e.g. gender, pronouns, sexual orientation, disability status) only to specific people and not to the public. If you are unsure what another person feels is private, don’t share; ask for permission first. The exception to anonymity are cases where harm or abuse has happened. If you have been hurt or aware of harm being done, please report it. 8. Try to be supportive if you can. A peer-support group depends on support from other members. Showing compassion to others helps you be compassionate to yourself and vice versa. Think about a response YOU'D like to receive and respond in a similar manner if you can. Try to respond to other members' issues or posts if you can empathize with what they've written. Even if you can't offer a solution to another member's issue, a supportive gesture or emoji can show your feelings to the other member.
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peiautisticadults
Nov 02, 2022
In General Info
PEI Autistic Adults is a community or peer support group of autistic adults including autistic seniors. Our goal or intention is to provide a space (virtually or IRL) to just be yourself in the company of other autistic people, no pressure, no expectations, just acceptance. A safe space to offer emotional, social, and informational support to other autistic people who share similar experiences. This goal applies to all PEI Autistic Adults Support Group's spaces, online and in person. Some things to consider to promote acceptance and inclusivity: There are a lot of different ways to be autistic, and no way is better than any other way. We need to find ways to help everyone feel like they belong here as autistic groups should include all autistic people. Our members are a variety of ages including teenagers and have varying technical and intellectual abilities. We should all remain mindful of that as we don't want to exclude anyone. All autistic people are important, and deserve rights and respect. Pay attention to what you think, what you do, and how you treat other autistic people. You might be doing things that leave people out. You might not mean to do them, and you may have never realized you were doing them. That is normal. Now that you know, you can stop doing them. Look at our autistic communities and ask yourself who is missing. Once you figure out who is missing, think about why and how they got left out. Then, we should try to fix those things. Learn about ways to help everyone feel like they belong. Talk to different kinds of people, and learn what makes them feel like they belong. There is always more to learn. It’s important to keep learning.
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peiautisticadults
Oct 17, 2022
In Welcome to the discussion
AASEN PEI sent us new info today so I've replaced what was posted previously. So where it says 'we' and 'our' its referring to AASEN PEI. "Atlantic Autism Supports and Employment Network (AASEN) is an innovative network that provides employment skills and supports to address challenges that have emerged for job seekers on the autism spectrum during pandemic and post that. Employment Support is an online peer support group to navigate through the employment supports available in PEI. It provides a safe space to come together and talk about the employment gaps and focuses on building the network of support through a community of practice. Our Employment Support Program comes with an excellent opportunity. We hire First Voice Leader to co-facilitate the program with us. Week 4 into the program. The pay is competitive. If you are looking for a great opportunity come, be part of our ESG group, classes once in two weeks for an hour, and meet some great people. For more information email: nida@starsforlife.com or DM us. https://www.facebook.com/Atlantic-Autism-Support-Employment-Network-PEI-108630628444209 Career Quest: It is an online job search group that happens twice on zoom. It is an endeavor to help autistic adults be more prepared for job -search and interviews. It also attempts to develop the much needed job skills in the process. We support you while you take care of your resume cover letter and interview skills before landing your big job. Networking is crucial and we don't miss it too. Come join us on zoom on Mondays and Thursdays as we help you get closer towards your employment goals. If landing a job is just not on your mind right now but you really want to work on your other skills, we got your back.
Atlantic Autism Support and Employment Network Program content media
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peiautisticadults
Sep 14, 2022
In Welcome to the discussion
This is the message I received from the CBC reporter: "My name is Clare MacKenzie and I am a journalist on the digital team with CBC PEI. I was forwarded your email to CBC by my digital producer this morning and I am excited for the opportunity to write a story about your peer-support group. As a journalist, I recognize the importance and newsworthiness of this story. And as the mother of an adult son with autism and the stepmother of a young woman with autism, I can also personally appreciate the need for your group - and the importance of spreading the word about it to other adult Islanders with autism. I am going to take time today to read all of the information on your website and take some notes, and will be back in touch later today or tomorrow morning with some questions I will email to you. In the meantime, if there is any other information you think would be helpful in best telling your story, please send it along directly to me." I want this to be 'our' story and not my story and I think my perspective is fairly well captured on the website already but I did respond to her to mention that although most people think autism only affects children our website group has members in their 20's, 30's, 40's, 50's and one in her 60's. I really hope others will consider contributing "any other information you think would be helpful in best telling your story," whether you're a student, a parent, a working person, a non-working person anything but a retired 68 yo. You could share your perspective of what the group means to you or what you hope it will become or why its important; or adult autism in general, adult autism on PEI, what its like being autistic on PEI as a student, as a parent, etc. You can use your name or not. A few sentences, a paragraph, whatever you can throw together in the next couple days or so would be great. Please consider participating so we can make this an interesting article.
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peiautisticadults
Sep 14, 2022
In Meetings!
Meeting of PEI Autistic Adults will be on Saturday September 17 3:30-4:30 pm in the Lady Slipper Room at the Charlottetown Library Learning Centre @ Dominion Building, 97 Queen St, Charlottetown. All members are welcome - first 8 get a seat 😀 As Katherine mentioned if the room isn't suitable we can move outside if the weather's nice. There's also large booths at the back of the library and we could probably move into one of those if necessary. We can talk about our group and how to move it forward or any thing anyone wants to talk about. See you there!
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peiautisticadults
Sep 01, 2022
In Meetings!
The first Meeting of PEI Autistic Adults will be on Saturday September 10 3:30-4:30 pm in the Blue Jay Room at the Charlottetown Library Learning Centre @ Dominion Building, 97 Queen St, Charlottetown. All members are welcome - first 10 get a seat 😀 We can discuss setting up regular (monthly?) meetings, if we need rules of engagement for the group, membership requirements (?) and then general discussion of anything anyone wants to talk about. I hope people will come to the meeting. I was recently emailing with Sandy Slade who started the ADHD Support group(s). He said for about the first year, there were just 4 of them at the meetings. They now have 2 in person meetings a week, 1 in S'Side and 1 in Ch'town, a weekly zoom, over 150 followers on Facebook, etc . So I think our group will grow too...we just have to get started.
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peiautisticadults
Aug 04, 2022
In Welcome to the discussion
I got the following email today: "Hi There, My name is Anuj Agarwal, I'm the Founder of Feedspot. I would like to personally congratulate you as your blog PEI Autistic Adults Blog has been selected by our panelist as one of the Top 15 Adult Autism Blogs on the web. https://blog.feedspot.com/adult_autism_blogs/ I personally give you a high-five and want to thank you for your contribution to this world. This is the most comprehensive list of Top 15 Adult Autism Blogs on the internet and I'm honored to have you as part of this! We'd be grateful if you can help us spread the word by briefly mentioning about the Top 15 Adult Autism Blogs list in any of your upcoming post. Please let me know. Best, Anuj" Certainly surprising we'd be featured on a blog list - we'll have to use that as inspiration to come up with better blog posts. :)
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peiautisticadults
May 28, 2022
In General Info
Since we now have 15 members in our group (without me counting myself twice) I wanted to ensure everyone was aware of the features on the website and different ways to interact with other members. Besides creating a blog or forum post, as a member you can join conversations, follow posts, upload media, leave comments, and be notified of any new activity in discussions you're following. On the Members tab you can add personal details to your profile that will then be visible to other members. You can also contact or message another members, get to know each other, follow other members and interact online or in person. So you could add your special interests or hobbies, whether you're a student or a parent, whether you have pets, if you have a job, your age or location, or anything you think of to describe yourself and another member or members might have the same things in common. There are also posts in the General Info section of the forum that you can update if you're interested in group meetings online or in-person but I wanted to ensure you are aware there are other ways members can interact with each other in smaller groups or one on one.
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peiautisticadults
May 10, 2022
In Welcome to the discussion
Here's the email I received, you can access all the links to the report as well as register for a zoom call for insights on the report: "Good morning, We are pleased to inform you that our report titled Autism in Canada: Considerations for future public policy development - weaving together evidence and lived experience is now publicly released. On this page, you will find: A summary of the report The full report An easy read version of the summary The stakeholder engagement report We are also pleased to invite you to join the Assessment Chair, Lonnie Zwaigenbaum, and Vice Chairs, Mélanie Couture and Aaron Bouma on June 3rd or 14th as they provide insights on the report and answer questions. For further information, or to register for a session today, please visit the registration pages, linked below: Overview of the Report - June 3rd Overview of the Report - June 14th We would like to thank once again all the stakeholders that contributed to our work through their presence in our engagement sessions, the panel and working group members who provided their ongoing leadership, expertise and lived experience perspectives, as well as all others who participated in this valuable work. Yours truly, Serge Buy Canadian Academy of Health Sciences Chief Executive Officer www.cahs-acss.ca Ottawa, Canada
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peiautisticadults
Apr 22, 2022
In General Info
Yesterday there was a comment on facebook advising me "The forum is visible to anyone who visits the site (member or not) and that may discourage folks from participating." I had no idea the forum was open and visible to the general public, I thought the forum posts were 'public' only to the members of the group. So I made some changes and set the forum to 'members only' and then decided to make the blog 'members only' as well. I'd love to get some feedback on that...please comment if you think the blog should be visible to the general public or if that discourages people from posting a blog post. Additionally if there are ever changes I could make to the site that would make the group more comfortable please let me know. If you don't wish to post your comment or suggestion for the website please email peiautisticadults@gmail.com. Thank you
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peiautisticadults
Apr 13, 2022
In General Info
Although many autistic people are introverts, I know not all are and if you enjoy (or at least don't mind) talking on the phone please consider becoming our telephone liaison. It would be very helpful for the group if we had someone who could do phone interviews with local media. This would greatly assist us in getting the word out and growing our group. We have already had a request from the CBC PEI radio morning show to do a phone interview about the website. Those interviews often become stories on the CBC PEI website and so considering both would reach a large audience. Unfortunately I didn't feel I could do it. I tend to get really stressed on the phone and feel like I can't think straight, my mouth no longer connected to my brain. But I did ask whether another member could do the interview if they're comfortable on the phone and Laura said yes. Please advise if you wouldn't mind doing the interview and possibly others in the future. Reply to this message or send an email to peiautisticadults@gmail.com
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peiautisticadults
Apr 02, 2022
In General Info
I now have the ability to give additional rights to members. This includes blog rights. As you know if you've looked at the blog, I'm not a writer. My blog entries are links to articles others have written with some of my comments. It would be great to hear from other autistic adults who would like to write a blog or even share an article related to autism that you found interesting. I recently renewed the website for another year but I think that will be it if there's not more uptake or response. I don't need to pay for a website if I'm just talking to myself, I can do that for free. 😀 Additionally if there's someone with IT skills who could like to collaborate on the website, that would also be great. The template I'm using for the website is not really set up for a peer-support group so I've used pages differently than they were intended with varying degrees of success, I think 😐 So if you're interested please reply below or send an email to peiautisticadults@gmail.com telling me what you'd like to do. In fact if you have any questions about anything to do with the website and don't wish to comment publicly you can always send an email to peiautisticadults@gmail.com. Looking forward to hearing from you.
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peiautisticadults
Mar 27, 2022
In Welcome to the discussion
peiautisticsadults@gmail.com received this email with the subject line sleep issues: "I’m writing today as a representative from AIDE Canada, as I feel I have a resource that could be used within your community. As a collective, we are curating some of our content and sending it out to groups that we feel could benefit from it. Sleeping issues are often reported among the developmental disability population and are particularly common in children and youth on the autism spectrum. Today I am bringing you a short, animated video and a toolkit on the issue, and things that can help. The toolkit summarizes our current knowledge around sleep differences in individuals with developmental disabilities and provides an overview of evidence-based strategies that can be tried at home. There are also links to additional resources and questionnaires that can help you discuss these challenges with your child's medical team. The short, animated video provides tips for developing healthy sleep habits for individuals with developmental disabilities. The script was written by Dr. Penny Corkum of Dalhousie University and was developed and narrated by Dr. Fakhri Shafai of AIDE Canada. Below is a link to the video we have created for your perusal. Please pass it around to those you feel may benefit from it. We also have many other toolkits, webinars, articles, and infographics regarding Sleep and many other topics you may find helpful on our website. Video link: https://aidecanada.ca/learn/health/developing-healthy-sleep-habits-animated Overview: https://aidecanada.ca/learn/behavioral-supports/sleep-challenges-in-developmental-disabilities Website: https://aidecanada.ca/ Other helpful resources included on the website are: a free, nation-wide lending library a database of articles and research summaries focused on autism and/or intellectual disability a national map of autism and/or intellectual disability programs and services a calendar of events, including on-demand streaming of past recorded webinars, and several other features that we hope will be very valuable to our community. The direction and applications of the site were developed after many months of community consultations, quantitative surveys and focus groups with autistic self-advocates, parents, family members, service providers and educators. Please feel free to reach out with any questions, or feedback you may have! Best Regards Rebecca D’Agnilli www.aidecanada.ca" I was initially pleased to see the email but then really disappointed once I read the material and saw that it was for children only. I started to prepare this response : "I'll admit I don't know how to respond to this email. Autism is a lifelong condition. The vast majority of autistic people will spend the majority of their lives as adults. Is your information suggesting autistic children 'grow out' of sleep issues by the time they are adults? Or could you possibly explain the obsessive focus on children and the exclusion of adults? I and most of the autistic adults I know have insomnia. I can't remember when I slept more than 5 hours. And, for example, all the issues described in ' The Impact of Sleep Issues on Children on the Autism Spectrum and their Families' impact me and others I know. I'd really like to understand why this information is presented this way instead of 'The Impact of Sleep Issues on People on the Autism Spectrum and their Families' or ' The Impact of Sleep Issues on Autistic People.' Additionally, most of "the reasons people on the autism spectrum experience increased levels of sleep disturbances" are not age related. So I have to wonder why you're looking at an issue that affects people and yet are only interested in helping children. " So, I didn't send it because I doubt it would be received well and also I don't really want to beat up on the people who sent the information. They didn't write it, they just gathered it up and sent it to an email address that includes the word autistic. But I do wonder what others think of either issue. Do you get frustrated that all the supports seem to focus on children and there's nothing for anyone else? I'm not suggesting children should be excluded but rather that autistic adults be included. Or if you'd rather not talk about that or think I'm overreacting do you have any comment on the sleep issues? I exercise, meditate, don't look at my devices in bed, etc., and I've had trouble sleeping all my life. Love to hear how others are faring.
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peiautisticadults
Feb 25, 2022
In Welcome to the discussion
Received by email: "Saint Mary’s University’s Access Ability is hosting a Virtual Career Opportunities Fair. Participants may be compensated. We’re very passionate and would love to help as many people as possible find employment and learn new skills. We do this by providing useful workshops, interview experience and access to local businesses that are hiring. The event runs from March 9th, 2022, till March 11th, 2022 and will be held through the Hopin online platform. Ten total customized workshops are presented to the participants on Day 1 and 2. These workshops will be administered by speakers with relevant expertise. On Day 3 a Keynote Speech and the job fair will be conducted. A limited honorarium is available participants that attend all three days of the Career Fair. (Payments will be sent out through direct deposit) We will also be offering ASL services and Closed Captioning. Please note, our registration closes on March 8th, 2022. If you are interested or would like to know more information, please contact accessability@smu.ca. Alternatively, the registration survey link is attached to the bottom of this email. Registration Survey Link: https://hopin.com/events/access-ability Sign up/Register "
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peiautisticadults
Feb 25, 2022
In Welcome to the discussion
I received an email about this opportunity: "King’s College London would like to invite you to take part in a 50-minute online survey covering a range of questions about burnout and related factors, including questions about mental/ physical wellbeing. This survey is open to autistic and non-autistic adults aged 18-35 and fluent in English for consenting and completing the survey. The main aim of the study is to better understand factors associated with ’autistic burnout’, and the impact of burnout on mental/ physical wellbeing and quality of life. We hope this will improve the identification of burnout in autism and inform support strategies for preventing/ reducing burnout. If you are interested, please follow this link to read more about the study and choose whether you wish to participate: https://qualtrics.kcl.ac.uk/jfe/form/SV_cAPs3bsnTtEMTzw Thank you for considering taking part in this study. Complete the Study "
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peiautisticadults
Jan 23, 2022
In Welcome to the discussion
This link was recently shared on Autism Canada ASD Central's Facebook group described as a company that is hiring IT consultants and are looking for people with autism. The company name is auticon and they describe their mission as: "Our mission is to match our colleagues on the autism spectrum with a work environment where they can meet their potential. We support our consultants and clients with job coaches and project managers." "Employment opportunities for autistic adults Permanent employment as an IT consultant at auticon Career opportunities at all levels – from junior to expert Fascinating and complex projects Projects that suit your skills and interests Freedom to focus on technical work An autism-friendly work environment Support from job coaches and project managers" You can read about them here https://auticon.ca/autism-spectrum-careers/ or click here to go to the application Good luck!
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peiautisticadults
Jan 17, 2022
In Welcome to the discussion
I received this email. Looks like a great opportunity for someone who would like to 'find employment/ start their own business and/or go back to school.' The Access Ability Entrepreneurial Mindset Program! We are currently recruiting participants that are unemployed, have a self-identified disability, and are able to work in Atlantic Canada. This is a free online program that lasts 4 weeks and participants will be compensated. I wanted to get in touch with you to see if you have anyone in mind for our program. We’re very passionate and would love to help as many people as possible find employment/ start their own business and/or go back to school. We do this by providing useful skills, experience and exposure to entrepreneurship. The program runs from February 1st , 2022 till February 24th , 2022 and will be held through the zoom online platform. Eight total customized workshops are presented to the participants twice a week, on Tuesdays and Thursdays from 1:00pm-3:00pm AST. These workshops will be administered by speakers with relevant expertise. Optional coaching and activities sessions will also be provided once a week, on Wednesdays 1-2pm AST. Attendance for each workshop will be compensated with $50/workshop, with an additional $200 bonus for successful completion of the certificate. A bonus is available if 6 or more workshops are attended. Payments will be sent out in the form of cheques through Canada Post. Please note, our registration closes on January 31st , 2022. If you are interested or would like to know more information, please contact Abygael.Cox@smu.ca. Alternatively, the registration survey link is attached to the bottom of this email. Registration Survey Link: https://smuniversity.qualtrics.com/jfe/form/SV_0Srxxh9hfT8C9Gm Register!
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